Listed in Erkrankungen - Haut, Gesundheit - Allgemein
Der Verein Selbsthilfe EPP e.V. ist eine Selbsthilfegruppe für Patienten der erythropoetischen Protoporphyrie (EPP). Menschen mit dieser Krankheit leiden unter einer genetisch bedingten Lichtüberemfindlichkeit, dadurch vertragen sie nur sehr wenig Sonne. Wir bieten Erfahrungsaustausch und Beratung unter Betroffenen.
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