Listed in Beratung - Weitere, Erkrankungen - Weitere
Menschen mit der seltenen Erkrankung des Ehlers-Danlos-Syndrom (und den daraus resultierenden Begleiterkrankungen)und dem Hypermobilitätssyndrom in eine effektive Gruppenarbeit - Austausch auf Bundes-Landes- Regionaler Ebene zusammenzubringen ist eines unserer Ziele. Die Erarbeitung und Veröffentlichung von Publikationen, sowie der Austausch mit EDS Verbänden/Gruppen nicht nur im europäischen Raum, sowie Medizinern im In- und Ausland wird seit langem erfolgreich praktiziert. Weiteres entnehmen Sie bitte unserer Website und / oder kontaktieren Sie uns.
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